The Jennifer Trust was established in 1985 by Anita Macaulay following the death of her daughter Jennifer who had Type I SMA. Jennifer died at the age of seven months. At that time Anita was told that the condition was so rare there was no research being done and that there were possibly only a handful of other families affected by this condition in the country.

Anita initially made contact with other families through a mother and baby magazine, and from that very small beginning the Trust has grown and flourished to become what it is today with nearing 2000 members. An organisation with a reputation for providing a high quality service and funding cutting edge research, which really does provide 'Help for today and Hope for tomorrow'.